A devoted dad is to leap from a plane to raise money for a charity which helps people afflicted with the same rare blood disease as his daughter.
Jamie Bamber, 35, will make the parachute jump above the North London Parachute Centre in March, Cambs.
The family from The Clements, Haverhill, has already raised more than £15,000 for the Lily Foundation.
Jamie’s wife Michelle ran the London Marathon last year and Jamie’s mother Liz Bamber played a tennis game with Tim Henman, who she used to coach.
Jamie, an events and conference manager at the Bedford Lodge Hotel in Newmarket said: “My daughter Lily, no relation to the charity, has a rare mitochondrial disease called Leigh’s Disease.
“She had normal milestones until she was two and a half and then she stopped walking.
“It took a long time until Lily was finally diagnosed. This happened in December last year. At first the doctors thought she might have cerebral palsy.
“She’s four and a half now and doing well in every other element at the moment. Eventually it will affect her brain and nervous system.
“Lily is a very determined little girl and will be going to St Clements Primary School in Haverhill next month, it’s a great school.”
Jamie said the incidence of the disease is just 1:30,000 making it a hidden illness.
He added the Lily Foundation helps put the condition in the spotlight, helps fund research and supports families.
“I am really looking forward to the parachute jump, but that may change on the day.
“I hope to raise up to £15000 through the sponsored jump.”
You can donate by going to www.justgiving.com/jamie-bamber