Haverhill boy Cayden Tickner, 11, succumbs to aggressive brain tumour after 14-month fight
The mum of Cayden Tickner has paid tribute to his fighting spirit and positivity after the 11-year-old lost his life to an extremely rare brain tumour.
Cayden died at the East Anglian Children's Hospice (EACH) in Milton on the morning of Friday, May 3, just one day after being admitted.
His death came 14-months after he was diagnosed with a brain tumour that was so aggressive and so rare, said his mum Carol Le Roy, that it didn't even have a name
She said: "This particular tumour had not been seen before with anyone in the world.
"It has not even got a name. It was very unique, hence why they had not got any treatment they could offer."
After he was diagnosed with the cancer Cayden had undergone surgery twice, resulting in all but six per cent of the mass being removed - but the tumour caused Cayden to go completely blind.
He also had three courses of chemotherapy and six weeks of radiotherapy, but even after he had taken 'all they could give him', said Carol, it was not enough and the tumour began to grow back again earlier this year.
His condition deteriorated last week, to the point where he was pretty much paralysed, said his mum.
Carol and Cayden's dad, Gavin Tickner, who live in Cardinal Way in Haverhill, then decided it was time to take their son to the hospice on Thursday. He was to live for only one more night.
The past year has been tough for the whole family, said Carol, but Cayden's fortitude gave them all strength.
She said: "It's been a struggle. We've got through it quite well because Cayden coped with it quite well, to be fair.
"I guess that's helped us all a lot. If an adult went blind overnight they would not cope with it but he did. He had his times when he was down but he managed and he got on with it."
The support shown to the family in the wake of Cayden's passing has been exemplified by the number of flowers that have already been laid next to a memory tree that they have planted in their front garden.
Cayden's funeral will take place on June 6 at St Mary's Church in Haverhill (where a special concert was held on Good Friday to raise awareness of Cayden's situation)followed by a cremation at West Suffolk Crematorium in Risby.
The church service is open to anyone, explained Carol, but the cremation if for family only. She also asked that flowers only be sent by immediate family and that everyone else, if they wish, make a donation to the Joshua Tarrant Trust.