A mother who has raised £49,000 in 10 years to fight the rare condition that killed her daughter is opening her own charity shop next week.
Rose Felloni, from Haverhill, has been raising money for the Prader-Willi Syndrome Association since her daughter Deena Renyard died of the congenital condition in May 2005 at the age of 38.
Rose has long been selling goods on Facebook but felt a shop would offer greater opportunity and, on Tuesday, will open Allsorts in a cabin at the Plants that Grow garden centre in Ridgewell Road, Great Yeldham.
“As the name suggests, I’ll be selling all sorts,” she said. “I’ve got plenty of stock – three garages and a car full and a head that says ‘no more room’.
“I’ve also got a licence to take from the local recycling centre. You would not believe what some people throw away – you even see presents that are still wrapped up.
“I’ve got a brand new set of lady’s golf clubs, hiking boots, hiking sticks. A woman gave me a George Foreman gas grill and said ‘you won’t be able to sell this, it’s not in the box’ but it was still factory wrapped.”
When Rose gives the money to the association she will ask for it to go into research because Deena was a case study for Prof Tony Holland, who is working on the condition at Cambridge University.
Prader-Willi Syndrome is a condition where the mechanism that tells you you have eaten enough does not work.
Rose explained: “You can’t curtail the appetite. You can only control the condition.
“She was only 4ft 10in and weighed 35 stone when she died.
“There are only 2,000 identified cases in the country and because there are so few cases it is little known and the Government doesn’t put anything into research.”
The rarity also leaves sufferers and their families isolated. Rose recalled: “I couldn’t just pop over to someone else an say I need a blub or a hug because we were so few and far between.”