On the tenth anniversary of her daughter’s death, a Haverhill woman used the sum of her fund-raising efforts to make an incredible donation.
Rose Felloni’s daughter, Deena Renyard, died on May 20, 2005 from a condition related to Prader-Willi Syndrome.
Since then, Rose has devoted herself to raising money for charity, Prader-Willi Syndrome Association.
On the tenth anniversary of Deena’s death, Rose wrote a cheque and passed on the incredible sum she had raised which, by then, had come to £10,000.
Rose said: “This year was the tenth anniversary of my daughter’s death, which for some reason hit me harder than it has in past years, whilst having a good cry, a bank statement arrived telling me I had over £10.000 in my charity account This I took to be a sign so immediately I wrote and posted of a cheque for the £10.000 to the Prader-Willi Syndrome Association to be put into the research fund.”
Rose has raised money by selling items on Facebook. She has also raised funds by walking on fire, going on a tandem skydive, undertaking a wing walk and taking part in craft fairs.
She has also given talks on living with the condition, and has helped with book sales and car boot sales. As well as raising money to help the Prader-Willi Syndrome Association, she has also raised money for the St Nicholas Hospice and Help 4 Heroes.
Rose said: “I work alone due to the fact that there is nobody else living close enough to make it either worthwhile or cost effective in teaming up with other parents.
“There is also the added problem going on, in that those who still have children alive do not like to be reminded of either the early prognoses of their children or how desperate their children’s later lives could possibly be, even though the early prognosis of the condition now gives the sufferers a better chance of a much better life then my Deena had.”